Friday, June 27, 2014

Surgery Updates

2:15 - Surgery went well and we're back in the NICU with our sweet girl!  Everything went just as planned and they ended up removing about three inches of her colon.  It took a little longer than expected because they also found a urachal cyst that they removed.  She has about an inch-long incision on her tummy and internal stitches as well.  She is very sleepy but the anesthesiologist assures us that she initially woke up very alert and feisty!  We will spend the next 72 hours resting and keeping her still and calm and, hopefully, we can start introducing a little colostrum on Monday so that we can start filling her tummy and helping her feel better.

12:34 - They have finished and are starting to close, the surgeon should be up to talk to us soon!

11:08 - Great news!  They've found healthy tissue/ganglion cells and are starting the pull-through.

10:30 - We just got our first update, they had to do some additional prep work in the OR and place another IV (she now has two plus her PICC line) and are starting now.

9:10 - She is in the OR.  They expect the surgery to be done around 1pm.  We hope to have another update soon in regard to the first set of biopsies.

8:35am - All loaded up and heading to the OR.

10 comments:

  1. Thank you for sharing the good news!!! Praying everything continues to go smoothly!

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  2. So glad for you all!! Still praying! Hugs!!

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  3. So thankful and happy for you guys. Keep us updated!

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  4. Thank you so much for the updates. Thinking happy, healthy, colostrum thoughts!! xxoo

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  5. I am a friend of Jamie's and wanted to reach out to you. My son has Hirschsprung's and we live locally in Tacoma. We also have a blog. Really want to get in touch with you!! Praying for your sweet baby. ♡

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    1. I read your blog, thank you for sharing Franco Family and Isaac! We are also seeing Dr. Golden and Dr. Acierno performed our surgery today. It sounds like from what I read our experiences have been nearly identical as far as symptoms, admittance, timeline, etc. What would be a good way to get in touch? I'm on Facebook if that works - Codi Howell.

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    2. I love love love Dr. Acierno. She is seriously the best at what she does. She is also a mom so she really understands how hard this is for you guys. I am here for support in any way! I know we don't know each other but our kiddos now brought us together :) It is so scary and overwhelming. You are actually the first family I know of locally, meaning that I have been able to get in touch with. And Dr. Golden is aeesome as well.. The whole NICU staff is amazing there. I will find you on FB now. ♡ -Laura

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  6. Thank you for the updates!! We are praying for all of you!! Especially for Baby Claire to heal quickly!! So glad to hear she is a fighter ;-)! She will need that perseverance in next few years! Can't wait to get to hold her! Please let us know if there is ANYTHING we can do to help your family!!

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  7. So glad to hear it went well. I'm praying, all throughout my day. What a beautiful baby...I can't wait to meet her

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