Diagnosis

Claire's biopsy results came back yesterday afternoon and confirmed her surgeon's suspicion of Hirschsprung's disease.  Her surgery for tomorrow has been moved to 9am and is expected to last two to three hours.  They will be making an incision just below her belly button and, working from her bottom, will take biopsies along her colon in order to determine which sections have the appropriate number of nerve cells and then attaching the healthy tissue to her bottom.

She has not had anything to eat since Sunday which is making her pretty cranky and she will not be able to eat until at least Monday.

Prayer Requests:
-That the surgeon discovers that only a short segment of her colon is missing the nerve cells so that we can save as much as possible.
-That she tolerates the procedure well and everything goes smoothly.  Her surgery is also complicated further because of her heart, she has a VSD, PFO, and PDA.  Because of this, she will be assigned a special anesthesiologist that specializes in pediatric cardiology and a cardiology team will be standing by.
-That she is able to recover quickly so that she can begin to eat, she is very hungry and uncomfortable.
-That introducing colostrum/breast milk next week goes well and that she is able to pass stool so that we can go home soon!

After surgery, we will have a daily dilation routine for about six months in order to help make sure that the scar tissue heals properly and will be following up with her surgeon weekly
during that time as well with visits getting more spaced if things go well.

We will do our best to update as the surgery takes place.  We are so thankful for your prayers and support.