HOME!

We are HOME!  Once again, Claire surprised everyone and came home just 6 days post-surgery.  Everyone was celebrating with us as we were leaving and all of her specialists shared with us that they couldn't believe her progress.  She is truly remarkable <3.

Saying goodbye to Dr. Nuri,
the man who fixed our baby's heart!

Taking her home!

All loaded up to go home!

Talking to herself in the mirror on the way home <3.

A gift from the hospital.
Each bead represents a part of her medical journey
so far - surgeries, biopsies, transfusion, etc. 

Reunited and coloring with the big kids <3!!!

Since her VSD was so much bigger than they had anticipated, we are all expecting her to just soar now with how much more energy she will have and how much easier everything will come for her.  The VSD was 8mm (very big taking into consideration the very small size of her heart) and the surgeon shared with us that they always expect there to be some surrounding tissue that partially covers the hole to allow less blood to pass through but that she didn't have any extra tissue so hers was literally a BIG open hole.  We are so thankful that it is fixed now and that she can truly start to grow and enjoy this amazing life!

We will be keeping her isolated - no public places, etc. for one more week (2 weeks total) and then "cocooning" her for 4 more weeks and then she should be fully recovered and ready to spend time with all of you!

THANK YOU everyone for covering us in prayer, we have felt such an overwhelming amount of love and support for our little girl and that has touched a place deep in our hearts.