Monday, October 27, 2014

Amazing!


Can you believe this girl had open heart surgery just TWO weeks ago?  Her recovery has been nothing short of miraculous and she was already (as of Friday) able to come off of all of her heart medications - that's right, she is taking ZERO heart medications and her pulmonary hypertension is gone!!  

She is still an itty bitty thing (that's a newborn diaper!) but she's got nothing in her way now and we expect her to start catching up very soon!

So ... here's a picture to celebrate her health and the day she was given her life back!  Until two weeks ago, she struggled just to breathe and couldn't even suck on her pacifier without being drenched in sweat from how hard her body had to work.  We've got a "brand new" baby on our hands and it's truly ... amazing <3!!

We have a long day tomorrow: weight check, dietician, and 2-hour neurodevelopmental evaluation, 4mo well child on Wednesday and OT on Friday.  Next week is a big/busy week; we see the eye doctor, speech therapist (for feeding), dietician, surgeon, and OT. Updates to come! 

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