Thursday, December 18, 2014

Answering Your Questions: Question #1

We genuinely enjoy answering questions from friends and strangers alike about Claire and Down syndrome but, if we were being completely honest, sometimes those questions can sting. Instead of being offended *because it helps no one,* I have decided to take the time to answer a few of them to hopefully debunk some myths and to help spread awareness about the truths of Down syndrome.

Question #1: Does having a child with Down syndrome mean that you will be caring for a child the rest of your life?

Answer: Having a child means that you will be caring for a child the rest of your life. When anyone makes the decision to become a parent, we commit to support our children, at whatever level they need support, from the day that they are born until we are no longer able to provide it - this means something different for every child. None of us know what the future might hold for any of our children [or even for ourselves].

Individuals with Down syndrome have their own, unique sets of strengths and weaknesses just like any individual but I can share some generalizations. Individuals with Down syndrome are typically more sincere, more loving, more cuddly, more affectionate, have significantly lower levels of stress, are quick to forgive, do not hold grudges, are insanely flexible, have the most beautiful eyes and smiles, are very outgoing, and, although they experience a full range of emotions just like anyone, they generally [and genuinely] love life and people!  How many of us wish that all of our children would remain innocent with child-like faith, hope, joy and love?

Individuals with Down syndrome reach all of the milestones as their peers, typically, but not always, at a slower pace [if you remember, Claire started rolling over and communicating ahead of many of her peers although she is taking longer to master swallowing coordination, head control, and sitting up]. They are fully capable of living independent lives - although Justin and I both joke that we're not sure we ever want Claire to move out, she adds so much joy to our home! But like any parent, we will do our best to empower all of our children with the tools that they need to live successful and impactful lives.

Down syndrome isn't something to be feared - these individuals, like all of us, are a precious gift. Created perfectly in the image of God to teach us something unique about His character. If you remember back to our post about Holland (http://clairemichellehowell.blogspot.com/2014/06/holland.html)... We are still on vacation!!!! It may not be to the destination that we had planned for but we are enjoying every moment together and the unique sights and lessons that we get to take part in on the way that we wouldn't have gotten to enjoy without Claire being a part of our family.

I don't know why God chose us to be Claire's parents but I am so, so, so very thankful that He did! I didn't know how badly we needed her or what amazing lessons she would teach us all and we will be here, every step of the way to provide whatever level of support she [and her siblings] need, for as long as we are able to <3.

What other questions do you have?  I promise not to be offended - or share where they came from!  And if you have any comments about my answers, I'd love to hear your thoughts.

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