Home!

Claire still has not been able to gain significant weight despite now having a pump that feeds her calorie-dense breast milk directly into her intestine continuously throughout the day and night. But thanks to her amazing GI doctor, we are finally HOME! He advocated on our behalf and will be seeing us in his clinic all throughout the week to monitor Claire and to adjust her "calorie cocktail" as needed. I could have hugged him ;).

Another condition of us going home was promising that we could keep Claire "cocooned" as even a small cold would force them to push back her surgery by 3-4 weeks and she just doesn't have that time to wait. Hand sanitizer and hibernation are our new best friends.

I met her cardio-thoracic surgeon (Dr. Nuri) yesterday for quite some time. He explained the procedure and risks in great detail and the further reasoning why we can't wait any longer to move forward with it. He and his team are meeting tomorrow morning to go through all of Claire's images and to discuss the plan for surgery, she has the bigger hole (VSD) but also a few less-significant things that they also need to repair while they are in there.

Prayer requests:

-that we all remain healthy so that Claire can stay at home until surgery

-that Claire will start to gain weight as her size plays a big part in the outcome of the surgery 

-that her Creator and the One who knows her from the inside-out would impart great wisdom to the surgical team as they review her images and create their plan when they meet tomorrow morning

And remember friends, He holds YOU in His gentle and mighty hands too <3.

Claire telling Daddy all about the hospital

And finally, I'd like to thank all of you.  Our blog reached over 10,000 views this week. I am completely overwhelmed by the amount of people who are following Claire's journey.  Thank you for your continued prayer and support, it is such a comfort to know that there are so many praying for Claire and our family. If you have a moment to comment we would love to hear from you. Have a blessed and restful Sunday; there is always, always, always something to be thankful for.