We have BIG news today!! Claire hasn't taken a bottle since 1pm because .... she nursed tonight! She latched for the first time yesterday and we had our first successful breastfeeding tonight. It took nearly two and a half hours because she has trouble with the coordination of suck/swallow/breathe and she has a high pallet that makes it hard for her to get a good latch but she did it!! I could not be happier, we've been working so hard for this. I have no idea if she got enough and this further complicates our plan to get her to gain weight but it's such a big step! Now I'm just hoping that we get good news at her swallow study on Wednesday and that she continues to gain weight so that we can continue to keep trying.
Our appointments today went well. Claire gained 0.8oz since Monday which is under our goal of 0.5-1.0oz per day but she's going in the right direction which is great! She's on probiotics for the increased bacteria in her colon/intestines and her dilations are going so well that we were able to skip a size and go up two sizes -- I'm not convinced this is good news, it looks so big and she hates it :( but it means less time that we will have to do them overall.
We all really needed a day like today! Forward progress <3.
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